By Ben Mattlin
Ben Mattlin lives a typical, self sufficient existence. Why is that fascinating? simply because Mattlin used to be born with spinal muscular atrophy, a congenital weak point from which he was once anticipated to die in early life. not just did Mattlin pass though early life, he turned one of many first scholars in a wheelchair to wait Harvard, from which he graduated and have become a certified author. His virtue? Mattlin's lifestyles occurred to parallel the expansion of the incapacity rights circulate, in order that in lots of methods he didn't believe that he was once deprived in any respect, in simple terms different.
Miracle Boy Grows Up is a witty, unsentimental memoir that you just will not put out of your mind, instructed with engrossing intelligence and a distinct standpoint on residing with a incapacity within the usa.
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Additional info for Miracle Boy Grows Up: How the Disability Rights Revolution Saved My Sanity
A year later the Act is amended to establish a federal Bureau of Education of the Handicapped and, under Title VI, special funding to accommodate handicapped students. This basically fueled special-ed, not inclusion or “mainstreaming” in regular schools. Not until September 26, 1973—when I’m ten years old and starting sixth grade—do handicapped kids begin to gain the right to an integrated, quality education, with passage of the US Rehabilitation Act. Its Section 504 will prohibit discrimination based on disability in educational facilities that receive federal funding.
We’re just having fun, sharing. She continues to say no and I give up. Inez puts me back in my chair and we play ordinary board games. But it’s clear: I’m not going to let my handicap get in the way of my romantic life any more than I let it detour my education or anything else. 43 It’s a lesson I’ll carry with me long into adulthood, when it really matters. *** In 1968, the Muscular Dystrophy Association of America’s Labor Day telethon is broadcast outside the New York metropolitan area for the first time.
I don’t see how the pathetic spazzes on the telethon have anything to do with me except for being in wheelchairs. Unless I’m wrong about myself. About them. No, I definitely don’t want to be confused with those kids. I don’t want to feel sorry for them, either. It’s too depressing to bear, and I wonder if it’s real anyway, if those kids are as bad off as they say, or if they’re actually like me and the telethon is just telling people to feel sorry for them. In any case, I’m brought up to keep moving forward, never to pause for pity.