By Julia Lawton
Concentrating on an incredibly hard and delicate quarter of care The death procedure examines the stories of loss of life sufferers. in keeping with huge fieldwork carried out in an afternoon care carrier for sufferers with incurable ailments and an inpatient hospice the place the sufferers are forthcoming dying, the ebook considers the main vibrant but painful time for the human physique, the decline in the direction of dying.
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Additional info for Dying Process: Patients' Experiences of Palliative Care
This material not only provides comprehensive ethnographic support for the argument that illnesses affect social networks rather than individuals, it is also fed into a more general critique of anthropological (and other) models of the ‘Western’ person/self. 36 INTRODUCTION The final part of Chapter 3 develops and analyses the observation that, by the time a patient had reached a point close to death, the hospice often seemed to be left caring not for a person, but a mere body. Such material is used to provide a critique of the hospice movement’s ideological goal of enabling patients to ‘live until they die’, due to its failure to take account of the ‘bodily realities of dying’.
In day care, patients were often active and engaged; outside day care their lives tended to be characterised by increasing isolation, dependency and disengagement. In this chapter I suggest that, in response to patients’ actual, experienced needs, an informal model of care had evolved within day care which differed noticeably from the service’s formal goals and objectives. The formal rehabilitative ethos of day care could not have worked in practice, because of the impossibility of ‘rehabilitating’ or altering the context into which the patients had to return: the cultural setting outside of 40 D A Y C A R E : A S A F E R E T R E AT day care.
Iris was one of the favourites in day care because she was constantly cheerful and fond of teasing the staff and other patients. However, Iris painted a very different picture of her life at home. There she spent ‘endless empty hours vegetating in front of the television’. The monotony of her routine was only broken by visits from her daughter (living locally) who brought her meals. Because she was house-bound, she had lost contact with the small number of her friends who were still alive. The effect on her life was devastating.